It’s been long… too long…

Hello to the mass chatter that is the internet!

It’s been a long time and I won’t bore you with excuses or reasons why.  A lot has happened in the last year.  In some ways I’ve succeeded in simplifying and improving my life.  And in other ways I still have a lot to learn and grow from.

The narcolepsy is an ongoing battle that I’m not sure I’m even fighting back on.  I think I have learned to accept the constant nagging of sleepiness without letting it interfere with life.  I think the biggest change… and maybe only change… is my alcohol consumption is almost nothing.  I found I felt so much more lethargic after drinking so I’ve turned to drinking Kombucha when I want to curb my alcohol cravings.  Supposedly Kombucha is supposed to give you lots of B vitamins and energy but I haven’t  noticed much of a difference.  It’s just yummy and that’s good enough for me.

My partner and I now happily live in PA with his son.  I’m still adjusting to being a full time step-mom.  If you ever want to challenge yourself to be selfless and grow, become a step-parent.  It’s a lot to process and (I think) if you take it seriously causes you to grow up in ways you didn’t realize you needed to.  Then again I’ve yet to curb my sailor’s mouth, so my “growing up” is debatable.

That’s all my brain has to muster at almost 2:00am.  I hope all is well in your world.  I’ll write again in a year 😛

❤ Me

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An alternative approach to dealing with narcolepsy

Ain't I pretty?

I was looking oh so fabulous for my sleep study.  Sleeping with all those wires hooked up wasn’t easy!

When I recently got tired of constantly being tired, I decided to get a sleep study done.  To make a long story short, I was diagnosed with narcolepsy in May.  My case is thankfully mild – I deal with excessive fatigue.  I have not experienced cataplexy, hallucinations, or sleep paralysis (and I intend not to).  As with anyone who has ever experienced sleep deprivation, days where I’m wickedly tired leave me in a mental fog which can impact my ability to bring my best to my work and home life.

From a treatment and cure perspective, there’s no cure.  It is a condition that requires observation and management.  Traditional treatment is to take stimulant medications like Provigil, Xyrem, and Adderall, maintaining a set sleep schedule, and taking scheduled naps throughout the day.

For me medication is out of the question, and because my work schedule varies drastically, keeping a set sleep schedule and taking naps is rough.  As much as I love the taste of coffee, I’m trying to limit my caffeine intake due to the inflammatory effects it has on the body.  Needless to say, keeping myself alert can be difficult, but it’s not impossible.

Since I have an interest in alternative approaches to health and wellness (and an interest in my own health… it’s kind of important to me), I’ve decided to explore treatment outside taking medications and share my thoughts and findings here.  Even if you or your loved one have opted to take the medication route, these tips and suggestions are still useful in boosting wakefulness and increasing health and wellbeing.

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Update – 2 posts and she disappears for months

So apparently I was naughty and didn’t update for many months.  I’m the worst, but I’m going to work on fixing that.

A couple of things that have gone well for me in the last few months:

  • I was promoted at work to Front End Supervisor (More hours + a raise = Mo’e money!)
  • My partner and I have decided to move to PA next summer
  • My credit score/financial standing has improved
  • I discovered the cause of my constant fatigue is due to having narcolepsy

As a sincere apology here are a few things I’ve found on the interwebs in recent time that are awesome and awe-inspiring:

  • The Last Question by Issac Asimov – “First copyrighted in 1956, [this] was his best short story ever. Even if you do not have the background in science to be familiar with all of the concepts presented here, the ending packs more impact than any other book that I’ve ever read. Don’t read the end of the story first!”
  • The Portal Bedroom – Yes, this is a bedroom based on the Portal video game series.   It’s AMAZING and has DIY instructions on how to design your own.  This is great if you need inspiration on making your own nerd/geek themed living space.

You are welcome!

I hope all has been well for those of you who have popped in to check out this blog.  I have more ideas for posts on the way.  I promise I won’t completely disappear on you again.

This Week’s Lunch ~ Kale, Kidney Bean, and Quinoa Soup

KKBQ soup pot

Since mother nature can’t seem to make up her mind about the weather, I figured soup hasn’t gone out of style just yet.

I failed to mention on the About This Chick page that I’m somewhat lazy at times.  When it comes to preparing my lunch for work, I don’t enjoy standing in the kitchen each night planning out and making my meal.  Soup is one of my favorite lunch foods because it enables my laziness through quick and easy preparation, it’s delicious, and dare I say it, healthy (depending on what kind you make, of course).  It’s also something you can make with things you have *laying around in your pantry and fridge.  This can give it the added bonus of being an inexpensive meal.

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